Rare Disease Day 2018

Rare Disease Day posterThank you to all those involved in making Rare Disease Day 2018 so successful!

Rare Disease Day has grown so much from the first edition, in 2008, when just 18 countries, mainly from Europe, participated. For 2018 patient groups, medical professionals and friends of Rare Disease Day hosted events in over 90 countries! This year the #ShowYourRare campaign was launched with thousands across the world painting their face to show their support for those living with rare diseases.   

Rare Disease Day 2018 Official Video


Rare Disease Day Events

Social Media success

  • Thousands of people painted their face to show support for those living with a rare disease for the #ShowYourRare social media campaign.
  • The #RareDiseaseDay thunderclap reached 1 700 000 people.
  • The video was viewed by over 350 000 people.
  • #RareDiseaseDay trended on Twitter!

Media coverage

More information on the 11th edition of Rare Disease Day

Now, we want to hear about your events and experiences on Rare Disease Day!

Upload your photos and videos onto our website and send us your press clippings and links to videos if you had any media coverage for our media page!

If you haven't uploaded your 'Raise and Join Hands' photos you still have time.

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