Every year, thousands of events are organised around the world during the month of February to mark the occasion of Rare Disease Day. Patient organisations, healthcare professionals, researchers, policymakers and other members of the rare disease community organise Rare Disease Day events. In light of the global pandemic in 2021, please refer to these resources for any information regarding advice or restrictions to help you plan your events.

There are many ways to continue to raise awareness in your area and globally!

  • Host an online meeting, workshop or conference
  • Hold an art, photography or essay-writing competition
  • Organise a distant walk or march
  • Plan a sporting or fundraising event
  • Invite policy makers to a political event or present a manifesto to your local authorities
  • Share the official video and materials on social media!
  • . Illuminate a building! Take a look at the toolkit.



Rare disease day is organised by
eurordis logo
With the support
AFM Téléthon logo Chan Zuckerberg Initiative logo European Commission for acknowledgements - DG-Health-and-Consumers